SnorreFossland
commented
11 months ago Input from Jorgen
Why?:
Here are some of the primary purposes or reasons for conducting research into dementia:
Understanding the Underlying Causes Early Detection and Diagnosis Treatment Development Prevention Strategies Quality of Life Caregiver Support Public Health Impact Ethical Considerations Global Health Challenge Innovation Scientific Knowledge Technology Personalized Medicine and Treatment
Who?:
Neurologists and Geriatricians Neuropsychologists Clinical Researchers Neuroscientists Epidemiologists Geneticists Imaging Specialists Pathologists Nurses and Caregivers Social Workers Occupational Therapists and Speech Therapists Pharmacologists Ethicists and Ethics Committees Advocacy Organizations Researchers Healthcare Professionals Advocacy Groups: Pharmaceutical and Biotechnology Companies Government and Policymakers Funders and Granting Agencies Academic Institutions Long-Term Care Facilities Community Organizations Neuroimaging and Diagnostic Facilities Legal and Advocacy Professionals Technology and Software Developers Media and Journalists International Organizations
What?:
Clinical History and Symptoms Medical History Neuropsychological Assessment Neuroimaging Data Biomarkers Genetic Information Lifestyle Factors Environmental Exposures Cerebrospinal Fluid Analysis Clinical Trials Data Longitudinal Studies Patient and Caregiver Perspectives Epidemiological Data Ethical Considerations Cross-Disciplinary Collaboration:
How?:
Dementia Research Tasks:
Literature Review Hypothesis Generation Study Design Data Collection Data Analysis Biomarker Analysis Genetic Analysis Neuroimaging Analysis Clinical Trials Ethical Considerations Interdisciplinary Collaboration Dementia Diagnosis Tasks:
Clinical Assessment Medical History Review Neuropsychological Testing: Neuroimaging Interpretation Biomarker Assessment Genetic Counseling Differential Diagnosis Ethical Discussions Communication with Patients and Families Long-Term Monitoring Collaboration with Care Teams Additionally, common perspectives:
Research Importance and Progress Ethical Considerations Patient-Centered Approach Awareness and Stigma Reduction Interdisciplinary Collaboration Access to Diagnostics and Care Research Funding and Investment Innovation and Technology End-of-Life Care and Advance Directives Global Perspective Processes and Project Management functions to be instantiated:
Define Clear Objectives Assemble a Multidisciplinary Team Secure Funding & Funding Acquisition Ethical Considerations Literature Review Research Planning and Design Study Design Data Collection Collaboration and Data Sharing Patient and Caregiver Engagement Technology and Innovation Clinical Trials Data Analysis Translation to Practice Policy Advocacy Public Engagement and Awareness Long-Term Monitoring, Follow-Up &Feedback Loop Continued Education Global Collaboration Evaluation and Quality Improvement Multidisciplinary Collaboration Study Design and Protocols Data Collection and Analysis
Propose a new Concept model for Dementia treatment with Why, Who, How, What and (When)