nicoleslaw
commented
7 years ago x-posting some notes here from Slack for my own reference.
They’ve called the site a database, registry, free service, and web-based resource. I am wondering if any of these terms resonate for you as members of the public, or if any other terms come to mind.
One of their goals is to make it clear they don’t endorse these clinical trials. I was thinking of it as a lookup tool or registry but am open to other ideas.
And for reference, here’s a sample:
ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.
I noticed that the site often uses study and trial interchangeably. Is there a difference to our stakeholders? Based on the glossary, it seems like trials are only one kind of study on the site, but maybe I am splitting hairs:
CLINICAL STUDY A research study using human subjects to evaluate biomedical or health-related outcomes. Two types of clinical studies are Interventional studies (or clinical trials) and Observational studies.
INTERVENTIONAL STUDY (or Clinical Trial) A clinical study in which participants are assigned to receive one or more interventions (or no intervention) so that researchers can evaluate the effects of the interventions on biomedical or health-related outcomes. The assignments are determined by the study protocol. Participants may receive diagnostic, therapeutic, or other types of interventions. A Study Type.
OBSERVATIONAL STUDY A clinical study in which participants identified as belonging to study groups are assessed for biomedical or health outcomes. Participants may receive diagnostic, therapeutic, or other types of interventions, but the investigator does not assign participants to specific interventions (as in an Interventional study). A Study Type.
Write a few variations for testing: