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AmsterdamUMC / AmsterdamUMCdb

AmsterdamUMCdb - Freely Accessible ICU database. Please access our Open Access manuscript at https://doi.org/10.1097/CCM.0000000000004916
https://amsterdammedicaldatascience.nl/
MIT License
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follow up time #48

Open XiangBu opened 2 years ago

XiangBu commented 2 years ago

hi, I want to calculate survival days like 90-day or longer mortality from the date of ICU admission. I didn't find related information about follow-up time after discharge. And also I find in this paper 1-year mortality was calculated. Sharing ICU Patient Data Responsibly Under the Society of Critical Care Medicine/European Society of Intensive Care Medicine Joint Data Science Collaboration: The Amsterdam University Medical Centers Database (AmsterdamUMCdb) Example. Could you please clarify this? Thx a lot! image

patrickthoral commented 2 years ago

Hello @XiangBu, the dateofdeath field specifies the date on which the patient died calculated as the number of milliseconds since the first admission, if applicable (non-null). For patients that died in either the ICU or our hospital we are 100% sure that this information is correct. For billing purposes, for a proportion of patients we also have that data while a care path (Dutch: DBC) is active with the hospital. Typically those care paths will be finalized within the year when no chronic care is provided. However, currently the database does not contain information to be completely sure what the follow-up time was for a specific patient.

XiangBu commented 2 years ago

Thanks for your reply! So you mean AmsterdamUMCdb contains all patients' outcomes within ICU or hospital and DBC only contains part of patients' outcomes within one year?