StructureDefinition - Family History to support exchange of RAC and summary digital health data in Australia

[dtr-agency]

Prerequisites

• [ ] I have searched open and closed issues to make sure it isn't already requested or reported
• [ ] I have written a descriptive issue title

The issue / feature

Change description

Design and develop a set of materials that define a Clinical Information Object for Family History for the electronic exchange of narrative family history information between patients, healthcare providers, and between healthcare providers and the My Health Record system infrastructure in Australia.

What are the use cases we want to support?

• We want to be able to record a narrative summary of significant health and related issues in family members for a patient
• We should be able to supply the standard protocol in some computable format
• We want to be able to exchange structured, coded, specific family history observations

What it actually enables people to do

Mockups

If applicable, add screenshots or mockups to help explain the issue / feature.

How awesome would it be?

Workarounds

Additional context

Narrative summary to align with family history summary item from the Primary Care Data Dictionary (see Phase 1 Deliverables (2018/19)) Structured data to align with AU Primary Care Family Member History

[dtr-agency]

1. Need an AU Base FamilyMemberHistory
2. Need an AHDA Core FamilyMemberHistory
3. May need one or more extensions, and use case profiles in AU Base