AuDigitalHealth / ci-fhir-r4

Working drafts of HL7™ FHIR® Release 4 (R4) artefacts authored and maintained by the Informatics Architecture team at the Australian Digital Health Agency.
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ValueSet - Health program participation observation type #139

Closed dtr-agency closed 2 years ago

dtr-agency commented 2 years ago

To support key strategic objectives in Australia in support of digital health and interoperable data standards developed in collaboration with our partners we will propose a national data model for health program participation information that is realised as HL7 AU FHIR materials published in the HL7 AU Australian Base Implementation Guide (AU Base 2) and governed by the HL7 AU standards process.

Program participation observation types Request for Terminology to develop, if possible, a set of concepts to identify the type of observation of program participation status including:

Of interest is https://www.nhs.uk/conditions/nhs-screening/ for a list of the NHS screening programs.

Originally posted by @dtr-agency in https://github.com/AuDigitalHealth/ci-fhir-r4/issues/134#issuecomment-1057441604

dtr-agency commented 2 years ago

Early proposal for design team feedback

Please place this design in the context of a national data model to support health program participation – not scoped strictly to the national cancer screening. In particular what other values are of interest? And suggested title/uri – potentially it should be more in a sentence style i.e. ‘Participation in Health Programs’ or…

The current Poc FHIR Profile that shows where this set would be bound is here: Health Program Participation Observation (for transition to HL7 AU).

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Reason New value set
Suggested Title of Value Set Health Program Participation
Suggested URI https://healthterminologies.gov.au/fhir/ValueSet/health-program-participation-1
Suggested Description The Health Program Participation value set includes values that may be used to indicate the type of health program an individual has, will, or is intended to participate in. Values include a broad range of health programs including population health screening, treatment, and prevention programs.
Terminologies included SNOMED CT
Compose requirements Made up of the SNOMED CT concepts that support at the following (the words used are not important to be kept as-is):
1. Cancer screening program participation:
National bowel cancer screening program participation
National cervical cancer screening program participation
* National breast cancer screening program participation
2. Nutrition therapy program participation, e.g. Weight management program participation
3. Substance use therapy program participation, e.g. alcohol twelve step program participation
4. Mental healthcare program participation, e.g. depression management program participation
5. Disease management program participation, e.g. Diabetes management program participation
Business Reason for Request To support the exchange of health program participation information in Australia as part of the the current work plan initiative: NCSR integration with MHR system.
The set of values should support participation in a broad range of health programs including, but not limited to, screening programs. These are types of programs not instances i.e. the value for 'national ...' applies to all nations that have a nation program.
A page of is https://www.nhs.uk/conditions/nhs-screening/ for a list of the NHS screening programs.

dtr-agency commented 2 years ago

Feedback from terminology:

Clinical information modeller review concurs with terminology feedback.

dtr-agency commented 2 years ago

Revised proposal

Below request provided to Terminology, managed via FHIR Terminology Requests FTR-1513.

Please create a value set that includes SNOMED CT AU concepts that will enable indication of the type of information being shared - information on an individual's participation in a program. The set of values should support distinguishing between an individual's participation in a broad range of health programs.

This request is to support the exchange of health program participation information in Australia as part of the the current work plan initiative: NCSR integration with MHR system.

Element Description
Suggested Title: Participation in Health Program
Suggested URI: https://healthterminologies.gov.au/fhir/ValueSet/participation-in-health-program-1
Suggested Description: The Participation in Health Program value set includes values that may be used to indicate the type of health program an individual has, will, or is intended to participate in. Values include a broad range of health programs including population-based health screening, treatment, and prevention programs.
Compose requirements: Made up of the SNOMED CT concepts that support at the following (the words used are not important to be kept as-is) - noting that what is being observed is the individual's participation in a program not the program itself.

Cancer screening program participation (and other population-based screening programs):
- National bowel cancer screening program participation
- National cervical cancer screening program participation
- National breast cancer screening program participation

Nutrition therapy program participation, e.g. weight management program participation
Substance use therapy program participation, e.g. alcohol twelve step program participation
Mental healthcare program participation, e.g. depression management program participation
Chronic disease management program participation, e.g. diabetes management program participation
National immunisation programs

For context this value set will replace the placeholder binding in Observation.component.value in National Cancer Screening Program Participation Observation and Health Program Participation Observation (for transition to HL7 AU).

dtr-agency commented 2 years ago

Agency Terminology have advised the initial set of SNOMED CT-AU concepts that will be published to support this request are: 1602061000168100 |Health program participation| 1602071000168106 |Cancer screening program participation| 1602081000168109 |National bowel cancer screening program participation| 1602091000168107 | National breast cancer screening program participation| 1602101000168102 |National cervical cancer screening program participation| 1602111000168104 |Nutrition therapy program participation| 1602121000168106 |Weight management program participation| 1602131000168109 |Substance use therapy program participation| 1602141000168100 |Mental health program participation| 1602151000168103 |Depression management program participation| 1602161000168101 |Chronic disease management program participation| 1602171000168107 |National immunisation program participation|

Publication planned for the April 2022 release.

dtr-agency commented 2 years ago

ValueSet reviewed and approved for publication. Publication scheduled for April 2022 release.

NOTE: Infrastructure issue blocking publication of new value sets is currently in investigation.

dtr-agency commented 2 years ago

Published in the National Clinical Terminology Service; accessible via https://healthterminologies.gov.au/fhir/ValueSet/participation-in-health-program-1