falquaddoomi
commented
6 years ago Perhaps we'll include only the "Disclaimer and Data Use Policy" section in the text, since that applies to end-users. If we decide to revise the policy (e.g. to allow user-submitted data), we can re-display the splash screen in a future release.
Proposal to add a splash screen with text and an agreement checkbox that shows up on a fresh install and is impassible until the user agrees. Candidate text below (from http://brcaexchange.org/about/dataSubmissionPolicy):
Submission Policy
Data submitted to the BRCA Exchange will be made available on the open access tiers of the BRCA Exchange for unrestricted public view, redistribution and reuse. Submitters are responsible to ensure submissions are accurate and complete. They should inform the BRCA Exchange in a timely manner of any updates, errors or omissions. Submitters must also ensure they comply with ethical, legal and regulatory norms and standards in their own countries as well as applicable international norms and standards. In particular, submissions must not include personal or confidential data unless the submitter has obtained and archived the appropriate consents and/or approvals. The BRCA Exchange will take all reasonable steps to ensure submitters are appropriately acknowledged for their contributions.
Disclaimer and Data Use Policy
The information on this website is not intended for direct diagnostic use or medical decision-making without review by a genetics professional. Individuals should not change their health behavior solely on the basis of information contained on this website. The BRCA Exchange does not independently verify the submitted information. If you have questions about the information contained on this website, please see a health care professional.
Last Updated: 2/28/2017