[Syphilis] Generate correct FHIR with AOE and disease info from Single-Entry and Bulk Upload

jayna-SkylightDigital commented 5 months ago

Action Requested

Generate the correct FHIR with AOE and disease information from Single-Entry and Bulk Upload

Acceptance Criteria

Design

[ ] Design is ready for handoff (i.e. dev ready)
[ ] Design includes latest content updates
[ ] Capture questions that come up during the content and design work

Review

[ ] Reviewed with design and/or design lead
[ ] Reviewed with content strategist for final approval
[ ] Reviewed with product and engineering

Additional Context

Syphilis AOE Questions: The following information is to be presented on the screen for single-entry when the patient/participant has a positive/reactive Syphilis test result. ~(text below is meant as a placeholder until final confirmation is received from DHSP)~

From Nicole Gallaway, CDC SME for Syphilis:

Suggested order:

-- From Nicole Gallaway, CDC SME for Syphilis:

There is no ‘verified list of symptoms’. I think the signs/symptom list you show looks generally good, except alopecia appears missing.

Suggested order:

If Syphilis result [Radio button] Positive

What is the gender of their sexual partners? (Select all that apply)
[checkbox] Female
[checkbox] Male
[checkbox] Transwoman
[checkbox] Transman
[checkbox] Nonbinary or gender non-conforming
[checkbox] Gender identity not listed here
[checkbox] Prefer not to answer

Has the patient been told they have syphilis before?
[Radio button] Yes: 1087151000119108
[Radio button] No: 14732006
[Radio button] Prefer not to answer: 261665006

Is the patient pregnant?
[Radio button] Yes
[Radio button] No
[Radio button] Prefer not to say

Is the patient currently experiencing or showing signs of symptoms?
[Radio button] Yes
[Radio button] No

Which symptoms are they experiencing?
- Genital sore/lesion (SNOMED: 724386005)
- Anal sore/lesion (SNOMED: 195469007)
- Sore(s) in mouth/lips (SNOMED: 26284000)
- Body Rash (SNOMED: 266128007)
- Palmar (hand)/plantar (foot) rash (SNOMED: 56940005)
- Flat white warts (SNOMED: 91554004)
- Hearing loss (SNOMED: 15188001)
- Blurred vision (SNOMED: 246636008)
- Alopecia (SNOMED: 56317004)

Date of symptom onset
[MM/DD/YYYY]

[Button] Submit results

jayna-SkylightDigital commented 4 months ago

[Blocked] Need to discuss with ReportStream.

jayna-SkylightDigital commented 2 months ago

SNOMED codes (below) must be verified before we can proceed:

SNOMED's for the requested symptoms

"Genital sore/lesion": "724386005"

"Anal sore/lesion": "195469007" - Possible other values: Anal skin tag (195469007); Anal tag (195469007); Fibrous polyp of anus (195469007)

"Sore(s) in mouth/lips": "26284000" - Possible other values: Ulcer of mouth (26284000); Oral ulcer (26284000); Mouth ulceration (26284000); Ulceration of oral mucosa (26284000); Mouth ulcer (26284000)

"Body Rash": "266128007"

"Palmar (hand)/plantar (foot) rash": "56940005"

"Flat white warts": "91554004"

"Hearing loss": "15188001"

"Blurred vision": "246636008"

SNOMEDs for our “Has the patient been told they have syphilis before?"

"Yes": "1087151000119108"

"No": "14732006" - This is the SNOMED for "No history of" for a general condition since we couldn't find one specific to syphilis

"Prefer not to answer": "261665006" - This is general “unknown” code, taken from the existing value set we have

fzhao99 commented 1 month ago

Set of symptoms in the syphilis MMG: https://phinvads.cdc.gov/vads/ViewValueSet.action?oid=2.16.840.1.114222.4.11.7225

jayna-SkylightDigital commented 1 week ago

@DanielSass Please review and add a comment documenting the steps necessary to unblock this ticket.

CDCgov / prime-simplereport