CTN-0094 / public.ctn0094data

Harmonized and De-Identified Clinical Trials Data from CTN-0027, CTN-0030, and CTN-0051
https://ctn-0094.github.io/public.ctn0094data/
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Definition of missing UDS records #7

Open moziya opened 2 months ago

moziya commented 2 months ago

Right now the missing UDS records are defined as no record in visit and no record in uds. The rationale behind it is that the patients seldomly (only 1%?) refuse to provide the UDS results when he/she visits, and both uds and uds_temp do not contain any negative results.

It is better to have another data set indicating the existence of UDS records, even no positive record for any substance. Or I prefer to expand the data set uds_temp to include all UDS no matter positive or negative (if we have), there might be some records in uds_temp with all substances negative but _was_tempok is 0 (means the temperature is abnormal).

Besides, it is better to have documentation to describe this situation.

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