Closed Daniel-Mietchen closed 6 years ago
Maybe put in something about
@oyadenizbeyan will check with Organizing committee about what the best way would be to get the topic of making ethics data FAIR into the programme.
Potential starting point: http://sagebase.org/governance/participant-centered-consent-toolkit/
There was a SWAT4HCLS poster "Implementing ELSI 2.0 for international collaborative research: improving access to clinical and genetics data by connecting ELSI policies, FAIR data software solutions, and ELIXIR-AAI" (ELSI stands for "Ethical, Legal and Social Implications") but the author could not make it to the event, the poster did not contain contact details, and no further information is available from the conference website. Her contact details are at http://rd-connect.eu/person/sabina-gainotti/ .
as per https://www.rd-alliance.org/rda-11th-plenary-call-sessions and https://github.com/Daniel-Mietchen/events/issues/204