search

EBISPOT / DUO

Ontology for consent codes and data use requirements
Other
64 stars 15 forks source link

Deprecation: remove general research use and clinical care #45

Closed mcourtot closed 3 years ago

mcourtot commented 4 years ago

We propose to deprecate the term general research use and clinical care.

As the consent codes primary and secondary categories were deprecated in the previous release, the limitation on using only one primary category doesn't apply anymore. Consequently, we propose this term be split into 'general research use' (already in DUO) and 'clinical care' (to be created) - when applicable both can be selected.

mcourtot commented 4 years ago

There were offline concerns that GRU-CC is not equivalent to GRU + CC, based on the fact that GRU is for all research and that the GRU component of GRU-CC is only for health/medical/biomedical purposes and other biological research, including the study of population origins or ancestry. Definitions copied below for reference.

This doesn't impact the proposed change, as this proposal is about deprecating GRU-CC, and users can choose when applicable to use GRU + CC instead.

GRU-CC: 
definition: 
This data use limitation indicates that use is allowed for health/medical/biomedical purposes and other biological research, including the study of population origins or ancestry.
comment:
This term includes clinical care, which was not defined in the original consent codes paper. This term does not have a usage in our current use cases and we recommend using DUO:0000042, General Research Use, instead
GRU:
definition: 
This data use limitation indicates that use is allowed for general research use for any research purpose.
comment:
This includes but is not limited to: health/medical/biomedical purposes, fundamental biology research, the study of population origins or ancestry, statistical methods and algorithms development, and social-sciences research.
solideoglori commented 3 years ago

GRU-CC moved to obsolete, as it is now replicable by GRU (0000042) + CC (0000043).

mcourtot commented 3 years ago

As per the comment above, https://github.com/EBISPOT/DUO/issues/45#issuecomment-587440619, whether the Consent code GRU-CC is equivalent to DUO GRU + DUO CC does not impact the proposed change. GRU-CC has been deprecated, future users can evaluate whether DUO GRU with or without DUO CC is suitable for their needs. If not, they are invited to create a new ticket.