List of ethnicities for all forms

[BrigidRegan]

Please change the ethnicity options to: Hispanic or Latino origin Not of Hispanic or Latino origin

[rolandkrause]

Changing the layout of race and ethnicity will void all entries made for this respective fields so far. Should we go back to re-entry or preserve the records?

[rolandkrause]

You can check the current implementation in the "alternative" GGE project (https://redcap.uni.lu/redcap/redcap_v6.5.4/index.php?pid=62)

I can replace the race/ethnicity set-up from here.

[BrigidRegan]

I have no experience in this area and do not want to offend anyone! I have spoken to a few people and read up on this so hopefully this is correct now:

• In your "alternative", please change "Ethnicity" to "Hispanic/Latino status" and add the option of "Unknown"
• Please change "Race" to "Ethnicity" and remove "Hispanic" as an option
• Please move the "Hispanic/Latino status" section above the "Ethnicity" section Thanks!

[BrigidRegan]

Think it is fine to lose this data on the 20 odd that have already been entered

[rolandkrause]

The common data elements from the NINDS recommendation asks for labeling this ethnicity and race respectively (which I find offensively worded too btw). Note that far fewer "races" are indicated. I would probably favor a smaller set but that we might have to discuss at some point.

F1807_General_Core_CDES.docx

[rolandkrause]

I have done the changes as suggested and would prefer to add "not reported".

[BrigidRegan]

Thanks - agree adding 'not reported' as an option is a good idea

[rolandkrause]

Changed in the GGE onset suggestion form.