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IALSA / ialsa-2016-amsterdam

Multi-study and multivariate evaluation of healthy life expectancy (HLE): An IALSA workshop on multistate modeling using R
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Common Outcomes #4

Open andkov opened 8 years ago

andkov commented 8 years ago

I did a brief survey of the outcomes in Maestrom database.MAP, and ELSA are not supported by their search engines, and HRS is not even included in the roster. image

Please help me fill in the empty cells.

ampiccinin commented 8 years ago

Yes. Unfortunately HRS declined since they have their own system (and is massive).

MAP is on board, but due to how their metadata are stored requires hand entering all info, so this has slowed progress on integrating them.

ampiccinin commented 8 years ago

ADL:

http://hrsonline.isr.umich.edu/index.php?p=kwsearch&terms=ADL

http://www.elsa-project.ac.uk/documentation

HRS and ELSA have TICS, not MMSE

If you mean single item “how is your health?”, I believe HRS and ELSA both have these. Not as sure about MAP. You could try: https://www.radc.rush.edu/res/ext/documentation.htm . You may have to register and login to view.

HRS, ELSA and LASA do not have formal dementia diagnosis as part of data collection. Ditto MIDUS.

andkov commented 8 years ago

Thank you, @ampiccinin . I've completed the table based on your input. image

The only thing that MAP has (see #3 for the full list ) that remotely resemble a health indicator are

see #3 for details and basic frequencies

ampiccinin commented 8 years ago

They also have the following. I could request variables 34-37:

Question 34: QUALITY OF LIFE. 1.

As compared to other people your own age, would you say that your health is excellent, good, fair or poor?

Allowable Codes: 1 = "Excellent" 2 = "Good" 3 = "Fair" 4 = "Poor"

Question 35: 2.

Now, thinking about your physical health, which includes physical illness and injury, for how many days during the past 30 days was your physical health not good?

Question 36: 3.

Now, thinking about your mental health, which includes stress, depression, or problems with your emotions. For how many days during the past 30 days was your mental health not good?

Question 37: 4.

During the past 30 days, for about how many days did poor physical or mental health keep you from doing your usual activities, such as self-care, work, or recreation?

Question 322: 19.

Are you able to take care of making your own doctor appointments and going to see your doctor and other health care providers completely by yourself or does someone else help you?

Allowable Codes: 1 = "No help" 2 = "Help" 3 = "Unable to do"

Question 353: 3.

How often have you used home HEALTH CARE or a visiting nurse?

Allowable Codes: 1 = "Never" 2 = "In the past, but not currently" 3 = "Currently, less than once a month" 4 = "Currently, 1 to 3 times a month" 5 = "Currently, once a week" 6 = "Currently, 2 to 4 times a week" 7 = "Currently, 5 or more times a week"