Academic Ethics Review and Study Design, meet your Crowd

[mozfest-bot]

[ UUID ] b0f72d98-95d4-4092-8288-50d4c3557223

[ Session Name ] Academic Ethics Review and Study Design, meet your Crowd [ Primary Space ] Open Innovation [ Secondary Space ] Digital Inclusion

[ Submitter's Name ] Bastian Greshake Tzovaras [ Submitter's Affiliated Organisation ] openSNP [ Submitter's Github ] @gedankenstuecke

[ Additional facilitators ] Aurelia Moser,Athina Tzovara

What will happen in your session?

Usually, both the design of scientific studies as well as the ethics review of them is done with zero feedback from (potential) participants. This session will discuss the experiences that people made when research is done orthogonal to the wishes of participants. We will also do some persona-driven role playing and collaboratively evaluate why or if more extensive participant feedback, before the study starts, is important and whether there are alternative, crowd-driven ideas on how every step of the scientific process can be informed through participant feedback.

What is the goal or outcome of your session?

The big question is: can participant-driven study design and approval lead to better science? This session should be a first inquiry into whether crowd-driven feedback is useful, feasible and how such a system could work. This will enable the further prototyping of systems that enable participatory and democratic science.

If your session requires additional materials or electronic equipment, please outline your needs.

Ideally a projector to show some initial slides with the session idea, but could do without. Plus some space with pens & paper for writing notes and post-its for collecting ideas.

Time needed

90 mins

[gedankenstuecke]

@auremoser @aath0 there we go! 🎉 🎈 ✨

[KirstieJane]

Closing as @gedankenstuecke and @aath0 are going to combine this one with #181 :smile: