FHIR UC4: ResearchStudy metadata fields needs to be standardized across NCPI FHIR implementations

NIH-NCPI / NCPI_use_case_tracker

This repo is for tracking NCPI interoperability use cases.

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FHIR UC4: ResearchStudy metadata fields needs to be standardized across NCPI FHIR implementations #28

Open xavanx opened 2 years ago

xavanx commented 2 years ago

In order to support the features in the NHLBI BioDataCatalyst ecosystem, the following metadata from ResearchStudy needs to be included in a standardized way:

https://docs.google.com/spreadsheets/d/1OXQBXF8t1am4nUpc5uZ1mUKmcQl9r8znpDyssj2oUbI/edit?usp=sharing

cottonva commented 2 years ago

Is this a direct collaboration with NCBI? If so, should that be called out in the title? To be an NCPI use case there should be some sort of clear cross-platform coordination.

xavanx commented 2 years ago

We are hoping that the metadata will be standardized across all the NCPI sites. Will update the title.

RobertJCarroll commented 2 years ago

Do you have a link to the RFC / document describing Research Study metadata in BDC? I can't find it, but I believe it included a draft mapping to FHIR fields.