Is there a standard concept_id for gender identity?

[stephanieshong]

What is the use case for the new vocabulary (please also think about international use of the new vocabulary)? Wondering if we have standard concept_ids for gender identity https://athena.ohdsi.org/search-terms/terms/36675593 https://athena.ohdsi.org/search-terms/terms?query=non-binary

CDM may need to support two different concept values

What problems will the new vocabulary solve?

standard gender_concept_id and standard sex_concept_id

Is there a stable source to refresh the vocabulary? OMOP may need to support a new vocabulary that can accommodate both gender and sex at birth concept ids

Is there a license restriction? I do not think so.

How large is the vocabulary (number of concepts)? Below is one list that PCORnet model supports: TF=Transgender female/Trans woman/Male-tofemale GQ=Genderqueer/N on-binary SE=Something else MU=Multiple gender categories DC=Decline to answer NI=No information UN=Unknown OT=Other

What kind of relationships / mappings need to be created? standard concept_ids for gender

Are there reference sets for the relationships available or already included with the source data?

Is there internal hierarchy (e.g. classification) that needs to be preserved? more detailed information can be found here: https://www.federalregister.gov/documents/2015/10/16/2015-25597/2015-edition-health-information-technology-health-it-certification-criteria-2015-edition-base

Please provide a thorough description of applying the new vocabulary as an example. CDM may need to support both sex_concept_id gender_concept_id Reference links: http://phinvads.cdc.gov/vads/ViewValueSet.action?id=06D34BBC-617F-DD11-B38D-00188B398520 https://www.federalregister.gov/documents/2021/03/16/2021-05233/equal-credit-opportunity-regulation-b-discrimination-on-the-bases-of-sexual-orientation-and-gender

[stephanieshong]

PCORnet CDM supports: TF=Transgender female/Trans woman/Male-tofemale GQ=Genderqueer/N on-binary SE=Something else MU=Multiple gender categories DC=Decline to answer NI=No information UN=Unknown OT=Other

[DaveraGabriel]

HL7 is opening (September 14-October14, 2022) a ballot that includes Gender identity. The gender identity value set for that ballot can be found here: https://www.hl7.org/fhir/valueset-gender-identity.html The full ballot is called "Gender Harmony" and addresses concepts of sex and gender, globally. The project information page is here

Code | Display | Definition -- | -- | -- male | male | the patient identifies as male female | female | the patient identifies as female non-binary | non-binary | the patient identifies with neither/both female and male transgender-male | transgender male | the patient identifies as transgender female-to-male transgender-female | transgender female | the patient identifies as transgender male-to-female other | other | other gender identity non-disclose | does not wish to disclose | the patient does not wish to disclose his gender identity

[stephanieshong]

In case it is helpful, https://doi.org/10.1093/jamia/ocab196

[TinyRickC137]

Hello, @stephanieshong and @DaveraGabriel This issue was addressed in OHDSI multiple times. Shortly, the answer for the reason why the situation is like it is at the moment is mentioned here by Joe Pallas.

Gender_concept_id, despite the confusing name, only captures sex at birth. Non-binary genders should be captured in either observation or condition tables.

More on this topic at the forum: Standard values for gender Source_concept_id for gender, race and ethnicity Sexual orientation and gender identity

So, there is no real need for a new vocabulary to represent Sex/Gender. There are multiple standard concepts among vocabularies for quite any gender. Some of them are mentioned in the topics above.

[TinyRickC137]

I am closing this issue, please if you are interested in a discussion on this topic, come to OHDSI Forum