Open tesla809 opened 4 years ago
benoror
commented
4 years ago Hey @tesla809! Sounds very interesting! Actually since it's open sourced already and I don't have time to continue the roadmap at the moment, I could simply make you a maintainer if you'd like! What do you think?
What are your thoughts on how the Pivot it for COVID-19? Would love to pick your brain on that!
tesla809
commented
4 years ago Hey @benoror For sure. I would love to be a maintainer on the project. Its is the one I like the most on the blockstack network.
I am having a call today with an Emergency Room Doctor and a Systems Architect to see what indicators we will add. One is a medical protocol to see for flu/respiratory issues. The other is geolocation to help with tracking spread.
I am not sure if some anonymized social network component via phone numbers might be of use due to privacy issues.
The idea is to have a simple screen. Green if geolocation, symptom tracker are not in contact with someone with COVID. Yellow if there is a possibility. Red if there might be a high issue. Although we are still working out those details. It's tentative at the moment.
benoror
commented
4 years ago @tesla809 Sounds good! I have limited bandwidth, but I am interested in what you guys are doing, let me know how I can help, specially with the current situation!
I just gave you access to the Github org and the Trello board
I created the the landing page using a site generator, but I can import the assets and decide if we want to host it in a different CDN or something.
On other things, for what's worth here are some of my original ideas with Sundly, feel free to take them at face value and see if some of them are valuable for current COVID-19 outbreak:
My idea with Sundly was to create this trust without depending on 3rd parties, using decentralized technologies.
Right now I work in a cancer startup (HealthTree.org) and I can tell users are on board when enough trust is in place
The cohort of people we've talked with have clear incentives of owning their healthcare records for their own benefit. For example: Terminal Multiple Myeloma Cancer patients are willing to share their data right away when they get these clear outcomes:
- Find specialist near them
- Get new treatment options
- Being part of new research & drug clinical trials
- Educate themselves about their disease
- Get to know and talk with other patients with similar experiences etc...
My hunch is that this model can be replicated individually for many other diseases/conditions with enough incentive-effects (ex. not too aggressive, not too in-curable, not too benign either)
So in summary:
- I would like to validate if there's a market need at this time an age for preventive health and healthy people as well
- I would like to know if we should focus our efforts on building a platform (think of Github, but for healthcare), or instead reducing the use-case scope to a certain target market (ex. wellness, fitness, X disease/condition, ...)
AFAICT the exposure of data leaking scandals in recent years (Facebook, Cambridge Analytica, Capital One, etc...) have been raising awareness of the value of owning your data, but I am not sure if there's enough momentum already for a healthcare solution in the dApps space. Specially since both blockchain tech and healthcare digital standards (such as FHIR) are still in early stage.
As you can see, I was struggling to find a target demographic, as healthy people usually have little incentive to have it's control of their own data, unless they have clear benefits from it. But this COVID-19 outbreak might be a perfect fit for it!
I also was thinkering and deciding if jumping in to the "healthcare data platform" wagon, or focusing on a smaller scope / use case for it
Hi guys, Great project! I have been looking at it from afar. Super cool stuff.
Would you be cool if meetup.com/NYHAIS forks this and tries to port it to react-native for COVID-19?
Thanks, Anthony A.