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aehrc / redcap_pedigree_editor

Redcap External Module to allow the entry of a pedigree diagram, storing the result as a FHIR resource
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exporting pedigree data #2

Open jthomas08 opened 1 year ago

jthomas08 commented 1 year ago

Hello, this a great visual tool for family history, especially for cancer research. I'm new to FHIR so maybe I'm asking a dumb question. I exported my pedigree diagram, and the data looks to be in json format or perhaps its FHIR (not very familiar with that) but are there a tools that can look at the notes field and help clinicians with the research. I assume the fhir format used to encode the visual representation has an interpretation.

dconlan commented 12 months ago

@jthomas08 I'm really sorry, some how my github account decided I should not be notified about issues in my projects :(

I suspect a year later you have already sorted things out or given up on the tool. The data will be json using FHIR resources to describe the pedigree diagram. There is settings that will store the data as a compressed uuencoded blob. I did write a small amount of documentation about the format here: https://github.com/aehrc/redcap_pedigree_editor/blob/master/open-pedigree/FHIR_Format.md