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ahcis-rds / study_finder

StudyFinder is a flexible and configurable application to pull studies from clinicaltrials.gov and augment the data from alternate datasources such as a clinical trials management system.
MIT License
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Suggestions for condition list #13

Closed jconcilio closed 8 years ago

jconcilio commented 8 years ago

Not urgent, but a couple conditions we have studies for that I noticed, that would be nice to include in the condition list:

Guillain Barre syndrome (GBS) Chronic immune demyelinating polyneuropathy (CIDP) Sjogren's syndrome Inflammatory myopathy Inclusion body myositis Dermatomyositis Polymyositis Lambert-Eaton myasthenic syndrome (LEMS) Congenital myasthenic syndromes Myotonic dystrophy Limb girdle muscular dystrophy (LGMD) Pompe disease

Not a rush, but we definitely refer to them a lot!

blackjk3 commented 8 years ago

@jconcilio the condition list is generated from the trials that are pulled down from ct.gov. Are you saying that those conditions are tagged in the trials that you are pulling down from ct.gov but not showing up in StudyFinder?

jconcilio commented 8 years ago

Well, I had previously thought so, but then I realized that in at least one of the cases, it's listed, but not listed as a "condition." (It's just in the text, and there are no conditions listed specifically.) It makes sense that it'd pull by conditions, though. Let me look into it a little more and see if I can come up with some specific ones to test, and then see what happens. I hadn't thought about that!

blackjk3 commented 8 years ago

Great! Keep me posted. I'll keep the issue open and if we don't find any specific test cases we can close it at that point.

jconcilio commented 8 years ago

Yeah, you can close this - it's the case that while conditions were listed in the description, they weren't included AS conditions in ClinicalTrials.gov, and I'm working with the study coordinators on improving that on their end.