Closed lottycoupat closed 1 year ago
Thanks @lottycoupat - collecting together some feedback from previous focus groups/meetings etc., I had this list of information:
What it is designed to investigate (sensory processing and navigating environments)
How it was made (participatory science)
"info" + video explanations
testimonials, pics, and quotations
Simplified data flow showing what happens when you enter an experience
Information about the research team (pics and profiles)
Find out more about [Autistica]
Find out more about [Turing]
Find out more about [Open Humans]
Research being done on the project
You can also view experiences which other people have consented to be made public, whether or not you share you choose to share your own experience.
When you have entered an experience, you can decide who to share it with. We believe that your data should belong to you, so it's your choice what to do with it. You can also change your mind at any time by going to my experiences and selecting which options you would like
If you choose to share your experience with researchers, your experience will be part of a dataset with other people's experiences, and researchers can apply to look at the dataset for the purposes of making the world better for autistic people and their families.
If you choose to make your experience public, your experience will first be checked over by a moderator to make sure it follows our code of conduct. You will be notified when a moderator has made a decision about your experience. If they decide it does follow our code of conduct, it will be published anonymously on this website and anyone will be able to viewe it. You can also choose to share with both researchers and to make it public by ticking both boxes.
If you choose to only share your experience with autistic people, then only people who have signed in to this website and told us they are autistic will be able to view your experiences.
If you choose not to share your experience you can still view it by going to [MyPage], and you can change your mind at any time.
The more experiences from autistic people we collect, the stronger our case will be and the better our knowleedge will be to make changes. These changes could include designing buildings autistic people like to be in, making public spaces and public transport less stressful to use for autistic people, and designing policy to support autistic people. Ou ultimate aim is always longer, healthier, happier lives for autistic peoeple and their families.
Hi @lottycoupat, @JamesSCTJ, @skfantoni - I've had a go at writing some content for the "About" page on how the project works and what happens with the data, in a way which is clear and not OTT. Would appreciate your thoughts!
What would the world be like if it was built by autistic people and for autistic people? How would it be different?
This website exists to answer that question. We are a group of autistic people, researchers, and allies of autistic people, who think that the world would be a much better place if autistic people had more of a say in how public and private spaces are used and designed.
Compared to non-autistic people, autistic people can experience the sensory world differently. For example, they may find sounds lounder, lights brighter, colours more beautiful and virbrant or busy spaces more overwhelming.
This can be a wonderful gift, but it can also cause lots of problems for autistic people and their families when they are trying to navigate a world which was not always built with autistic people in mind. For example, it can be stressful taking a busy train during rush hour, or attending an appointment in a brightly lit hospital waiting room.
All autistic people are different. We want to collect together lots of stories from autistic people and those close to them, for example family members, so that we can better understand how sensory processsing differences affect the way autistic people navigate the world around them.
Together, we can use this information to build a better world for autistic people and their families. There are three main goals:
The above text is adapted from the README - thoughts also really appreciated! I think if we go with a very simple visual for the Landing page and then we can have the addittional detail in the about page. Then if you click to find out more it can take you to the further information. Another option would be to have a scrolling page and have the more detailed information further down.
So it is appropriate for autistic people it should be clear, structured, and linear - ideally with icons and diagrams to back up the information.
Hi @lottycoupat I agree with @GeorgiaHCA’s comments. Looking at your list I’m concerned having all of this information on just one page may be overwhelming. I feel like there are several sections/categories that it may be better to separate.
Group 1:
Group 2:
Group 3:
Summary
The platform will have an About page. How this page will be set up can be seen in our figma board.
This will include the following information:
We need to have all this information put together so that our developers can add this to our platform page.
Date Due by
As soon as possible.
Details
Who can help
Anyone!
If you want to contribute to this issue, please comment on the issue with the area that you want to work on and tag @lottycoupat in your comment for information.