KIeHealthX eHealth – Opportunities and Challenges

[wanghaisheng]

https://courses.edx.org/courses/KIx/KIeHealthX/2T2015/courseware/5e2222daeb7f4712a47fa1db5b13f202/4232bbead5024dba93335dbd82effa45/

[wanghaisheng]

Week 1: Introduction to eHealth

What is eHealth?

o Concepts and definitions

o Types of eHealth applications

What renders eHealth specific?

o History of IT in healthcare

o Success factors and barriers to eHealth implementation Week 2: eHealth for Healthcare Professionals

How is healthcare organized?

o Health systems in an international context

o eHealth in the context of health, social and self-care

Who are the healthcare professionals?

o Different healthcare professionals and their way of using eHealth

Different types of eHealth for healthcare professionals

Week 3: eHealth for Patients and Citizens

Who is the patient?

o Differences in patient groups

o E-patients and empowerment

Different types of eHealth for patients and citizens
Patient data and ethics

Week 4: Designing eHealth

Design approaches

o Socio-technical system design

o User Centered Design

o Challenges in user involvement in eHealth

Tools for design

o Understanding the context of use

o Personas and prototyping Week 5: Technical Prerequisites

Technical demands on eHealth systems

o Technical infrastructure

o eHealth system architecture

Health informatics standards and terminologies
Mobile eHealth

Week 6: eHealth Strategies

Common denominators of eHealth strategies

o Overview and examples

Setting up and implementing eHealth strategies

o WHO/ITU National eHealth Strategy Toolkit

o Prerequisites for local eHealth adoption

o Experiences from national and local eHealth implementation

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Literature for week 1:

What is eHealth?

• Eysenbach G. What is eHealth? J Med Internet Res 2001;3(2):e20 http://www.jmir.org/2001/2/e20/ Oh et al. What Is eHealth: A Systematic Review of Published Definitions. J Med Internet Res 2005;7(1):e1 http://www.jmir.org/2005/1/e1/
• Pagliari C et al. What Is eHealth: A Scoping Exercise to Map the Field. J Med Internet Res 2005;7(1):e9 http://www.jmir.org/2005/1/e9/

What renders eHealth specific?

• Ahern et al. What Is eHealth: Perspectives on the Evolution of eHealth Research. J Med Internet Res 2006;8(1):e4 http://www.jmir.org/2006/1/e4/
• Shortliffe EH. The Future of Biomedical Informatics: A Perspective from Academia. Stud Health Technol Inform 2012; 180: 19-24 http://ebooks.iospress.nl/publication/21696
• Vimarlund V & Keller C. The many faces of implementation. VINNOVA Report VR2014:06 http://www.vinnova.se/upload/EPiStorePDF/vr_14_06.pdf

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Literature for week 2:

How is healthcare organized?

The WHO health systems framework http://www.wpro.who.int/health_services/health_systems_framework/en/

Who are the healthcare professionals?

Frenk, J., Chen, L., Bhutta, Z., Cohen, J., Crisp, N., Evans, T., Gates, M. (2010). Health professionals for a new century: transforming education to strengthen health systems in an interdependent world. The Lancet, 376, 1923–1958. doi:10.1016/S0140-6736(10)61854-5

Different types of eHealth for healthcare professionals:

O'Malley AS, Draper K, Gourevitch R, Cross DA, Scholle SH. Electronic health records and support for primary care teamwork. J Am Med Inform Assoc. 2015 Jan 27. pii: ocu029. doi: 10.1093/jamia/ocu029. PubMed PMID: 25627278.

Smith SW, Koppel R. Healthcare information technology's relativity problems: a typology of how patients' physical reality, clinicians' mental models, and healthcare information technology differ. J Am Med Inform Assoc. 2014 Jan-Feb;21(1):117-31. doi: 10.1136/amiajnl-2012-001419. Epub 2013 Jun 25. PubMed PMID: 23800960; PubMed Central PMCID: PMC3912703. http://jamia.oxfordjournals.org/content/jaminfo/21/1/117.full.pdf

Lanham HJ, Sittig DF, Leykum LK, Parchman ML, Pugh JA, McDaniel RR. Understanding differences in electronic health record (EHR) use: linking individual physicians' perceptions of uncertainty and EHR use patterns in ambulatory care. J Am Med Inform Assoc. 2014 Jan-Feb;21(1):73-81. doi: 10.1136/amiajnl-2012-001377. Epub 2013 May 22. PubMed PMID: 23698256; PubMed Central PMCID: PMC3912724. http://jamia.oxfordjournals.org/content/21/1/73.long

Chapter one in Clinical decision support: the road ahead. RA Greenes - 2011: books.google.com

About Diagnostic Imaging: http://www.nlm.nih.gov/medlineplus/diagnosticimaging.html

http://www.radiologyinfo.org/

Additional references:

Primary health care – now more than ever, WHO 2008 http://www.who.int/whr/2008/en/

WHO health worforce resource centre

Frenk J (2010) The Global Health System: Strengthening National Health Systems as the Next Step for Global Progress http://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1000089

Savigny D de, Adam T. Systems thinking for health systems strengthening [Internet]. 2009 [cited 2013 Sep 25]. Available from: http://www.who.int/alliance-hpsr/resources/9789241563895/en/

Lau F, Kuziemsky C, Price M, Gardner J. A review on systematic reviews of health information system studies. J Am Med Inform Assoc. 2010 Nov-Dec;17(6):637-45. doi: 10.1136/jamia.2010.004838. Review. PubMed PMID:20962125; PubMed Central PMCID: PMC3000756. http://jamia.oxfordjournals.org/content/17/6/637.long

[NOT OPEN ACCESS!] Green L V, Savin S, Lu Y. Primary care physician shortages could be eliminated through use of teams, nonphysicians, and electronic communication. Health affairs (Project Hope) [Internet]. 2013 Jan [cited 2013 Sep 25];32(1):11–9. Available from: http://www.ncbi.nlm.nih.gov/pubmed/23297266

eLearning for undergraduate health professional education A systematic review informing a radical transformation of health workforce development: http://www.who.int/hrh/documents/14126-eLearningReport.pdf

[wanghaisheng]

In this section we will explain what we mean when we talk about “the health system”, which is very different from a Health IT or eHealth system! Health systems research is of course a whole research field in its own right, and you will only get a very brief introduction here, but if you find this interesting please explore the links to literature provided. We have invited the senior professor of International Health Systems Research Göran Tomson from the Health Systems and Policy research group at Karolinska Institutet to give a brief introduction to what the building blocks of a health system are. If you want to hear more about this topic, we also recommend you to watch this longer lecture by professor Tomson: https://www.youtube.com/watch?v=KLSv8zrO3Kk . We will also discuss some of the differences between health, social and self-care when it comes to the use of eHealth.

[wanghaisheng]

week2 作业完成

[wanghaisheng]

LITERATURE FOR WEEK 3:

Who is the patient?

e-patients white paper: http://e-patients.net/e-Patient_White_Paper_with_Afterword.pdf

Rosamund Snow, Charlotte Humphrey, Jane Sandall. What happens when patients know more than their doctors? Experiences of health interactions after diabetes patient education: a qualitative patient-led study. BMJ Open 2013;3:11 e003583 doi:10.1136/bmjopen-2013-003583

Dave deBronkhart, “Meet e-Patient Dave” – tedtalk april 2011.

Different types of eHealth for patients and citizens

Suggested reading/watching: www.quantifiedself.com

https://www.ted.com/talks/gary_wolf_the_quantified_self

Pew Research Centre: Report: http://www.pewinternet.org/2013/01/28/tracking-for-health/

Susannah Fox presentation: https://vimeo.com/95563082

Sara’s website: www.riggare.se

Swedish Quality Registry: https://www.youtube.com/watch?v=wjhkP8t1EmM

Doug Kanter on aggregating diabetes data: http://youtu.be/yvYCenifDwE?list=PLWIrCndjhuYvOg-sOV8QDnqEyqtxIp-pA

Patient data and ethics

My Device, My Body, My Data - An Access Conversation with Hugo Campos: https://medium.com/access-matters/my-device-my-body-my-data-4e158f8dfcec

When is patient data not patient data? When a patient wants his or her ICD data:

http://e-patients.net/archives/2012/11/when-is-patient-data-not-patient-data-when-a-patient-wants-his-or-her-icd-data.html

Quantified Self - Public Health Symposium: http://quantifiedself.com/symposium/Symposium-2014/QSPublicHealth2014_Report.pdf

[wanghaisheng]

week3 视频完成

[wanghaisheng]

LITERATURE FOR WEEK 4:

Socio-technical systems. Baxter, G. (2011). http://archive.cs.st-andrews.ac.uk/STSE-Handbook/SocioTechSystems In LSCITS Socio-Technical Systems Engineering Handbook. University of St Andrews. http://archive.cs.st-andrews.ac.uk/STSE-Handbook/

Sommerville Making ethnography accessible http://archive.cs.st-andrews.ac.uk/STSE-Handbook/Papers/MakingEthnoAccessible-Sommerville.pdf

Coiera “Four rules for the reinvention of health care” http://www.ncbi.nlm.nih.gov/pmc/articles/PMC411109/pdf/bmj32801197.pdf

I. Scandurra, M. Hägglund, S. Koch “From user needs to system specifications: Multi-disciplinary thematic seminars as a collaborative design method for development of health information systems” http://www.sciencedirect.com/science/article/pii/S1532046408000142

Gordon Baxter, Ian Sommerville, “Socio-technical systems: From design methods to systems engineering” http://www.sciencedirect.com/science/article/pii/S0953543810000652

User Experience method and deliverables: http://uxdesign.cc/ux-methods-deliverables/

When to Use Which User-Experience Research Methods: http://www.nngroup.com/articles/which-ux-research-methods/

User Experience techniques: http://uxmastery.com/resources/techniques/

[wanghaisheng]

http://blog.sina.com.cn/s/blog_68539c6d0101nems.html 【研究方法】Customer Journey Map（客户旅程地图法）简介