Open sergiocontrino opened 1 year ago
Just an idea for general information:
The clinical research repository is a file based repository - capable of holding any type of 'digital object' - be it a data set, a document, a computer program, or a media file. The secure infrastructure for file storage is provided by TSD, an established, secure, data infrastructure that is part of the University of Oslo. The interface of the repository is provided by ECRIN. We liaise with both data providers, for the transfer of digital objects to the repository, and data requesters, browsing the objects under managed access. Both processes are governed by formal agreements, one for the data providers, and another for the secondary users. ECRIN uses a Repository Management System, developed in-house, to manage and record this activity. The system developed so far is intended to provide and support: the management of repository content and its associated metadata; the transfer of data objects into the repository, including details of data contributors and their requirements; the quality control processes applied to uploaded data objects; the handling of data requests, in particular the responses of the repository in answering data requests; the usage of all types of stored data objects; the repository’s performance against pre-agreed quality criteria; interfacing with other systems, for example TSD and ECRIN’s MDR. The aim of these efforts is to provide a single system to support and record all the workflows associated with managing the repository.
added 2 placeholder pages for legal notice: https://crr.gitbook.io/crr/legal-notice and data privacy policy: https://crr.gitbook.io/crr/data-privacy-policy
TO BE FILLED
another version for @Gerd-ECRIN 's general info page:
The clinical research repository is a file based repository - capable of holding any type of 'digital object' - be it a data set, a document, a computer program, or a media file. The secure infrastructure for file storage is provided by TSD, an established secure data infrastructure that is part of the University of Oslo. ECRIN liaises with both data providers, for the transfer of digital objects to the repository, and data requesters, browsing the objects under managed access. Both processes are governed by formal agreements, one for the data providers, and another for the secondary users. ECRIN uses a Repository Management System, developed in-house, to manage and record this activity. The system developed so far is intended to provide and support: the management of repository content and its associated metadata; the transfer of data objects into the secure infrastructure; the collection of details of data contributors and their requirements; the quality control processes applied to uploaded data objects; the handling of data requests, in particular the responses of the repository in answering data requests; the usage of all types of stored data objects; the repository’s performance against pre-agreed quality criteria.
link to ecrin data privacy for our data privacy? https://ecrin.org/data-privacy-policy for the moment added the link in the gitbook doc
no idea where to find a legal notice, or what it should be.
we need content for: