Meeting notes with Sophia

[meagdoh]

Panel Discussion: research perspective on PPIE

• 7 Sept: patient perspective on PPIE
• Sophia finalizing a list of questions and will serve as the moderator
• Topic: discuss how different involvement can benefit the research process
• Ethics Review Groups (IRB equivalent)
• Research Ethics Committees
• Audience: RSF consortium
• Consider talking about IRB/PRA/how quality improvement
• just because something is usable does not make the functionality work for the research question
• users don't also know what the want but they will tell you what they need
• Sophia sending a blurb about the panel