Open jpwiedekopf opened 7 months ago
See https://gitlab.com/mii-termserv/fhir-resources/fr.inserm.orphanet.nomenclature and the NPM package at https://gitlab.com/mii-termserv/fhir-resources/fr.inserm.orphanet.nomenclature/-/packages. The SU-TermServ server will provide this package for OrphaNet - a VS can now be defined.
This package is based on the ballot version of the BfArM's NTS.
The CodeSystem for OrphaNet is missing.
There is a "terminology pack" available from Orphadata, and, after consulting Josef Schepers, I believe that converting the CodeSystem to FHIR should be somewhat easily doable.
I believe the legal notice of Orphadata allows this kind of use: