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monarch-initiative / mondo

Mondo Disease Ontology
http://obofoundry.org/ontology/mondo
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Feedback form - Abby Lievense - To whom it may concern, I am a co-founder of CureSHANK; w... #7486

Open monarch-issues-tracker[bot] opened 9 months ago

monarch-issues-tracker[bot] commented 9 months ago

Name Abby Lievense

Email abby@cureshank.org

GitHub Username

Details Page: /MONDO:0011652#extra-info Browser: Chrome 121.0.0.0 Device: OS: Windows 10 amd64 Engine: Blink 121.0.0.0

To whom it may concern,

I am a co-founder of CureSHANK; we are a patient advocacy group for Phelan-McDermid syndrome. Would it be possible to add our name to your listing for Phelan-McDermid syndrome? Perhaps in the "extra info" section? www.cureshank.org

Thank you for your consideration, Abby

matentzn commented 7 months ago

Hello Abby. For now, unfortunately, we do not have a way to capture "advocacy groups" per se. However, if you provide us with a specific link (URL) that contains detailed information about the syndrome, we can consider adding this information as a "linkout" using the seeAlso relationship.