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nhsuk / nhsuk-service-manual-community-backlog

This is a place for digital teams in the NHS to work together and develop the NHS digital service manual.
https://service-manual.nhs.uk/community-and-contribution
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Breast screening and gender neutral language #376

Open sarawilcox opened 3 years ago

sarawilcox commented 3 years ago

A place to capture user research findings and other insight into making breast screening content inclusive for trans and non-binary users.

Related issues

sarawilcox commented 2 years ago

The NHS.UK team is currently doing some work on inclusive language around gender and sex.

Zeno001 commented 2 years ago

That's good to hear, @sarawilcox. Can you say more about this and what they will take into consideration?

Zeno001 commented 9 months ago

The UK Network of Professors of Midwifery and Maternal and Newborn Health has just published a position statement on the use of sexed language in relation to women’s reproductive health:

Position Statement: Use of sexed language

Their position seems to be eminently sensible and, importantly, evidence-based.

Zeno001 commented 2 months ago

More on the harms of not recording the sex of patients - regardless of their 'gender identity':

Thousands of transgender patients in England are missing out on vital cancer screening because of the way their GP records are drawn up, experts have warned.

Everyone registered as female with their GP is automatically invited to breast screening from the age of 50 to 70, and to regular cervical screenings from 25 to 64.

But warnings from experts at the World Cancer Congress in Geneva this week, underscored by official NHS guidance, show that many trans patients are not invited to undergo the tests.

In England, trans men who were registered female at birth and have changed the gender on their patient record to male are not offered breast or cervical screening, regardless of whether they have had chest reconstruction or a hysterectomy.

Trans women who are still registered male with their GP are also not offered routine breast screening, even if they have been on longterm hormone therapy, which puts them at added risk of breast cancer.

Experts say the problem is the way GP electronic records in England are updated when patients change their gender.

Trans people in England missing out on vital cancer screening, experts warn | Transgender | The Guardian