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This is a place for digital teams in the NHS to work together and develop the NHS digital service manual.
https://service-manual.nhs.uk/community-and-contribution
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Autism - content for autistic people #81

Closed markasrobinson closed 2 years ago

markasrobinson commented 5 years ago

Terminology around autism can be a sensitive subject for autistic people.

We need to produce some guidelines on what terms to use/avoid.

For example:

sarawilcox commented 5 years ago

Sounds good @markasrobinson. Is there learning from the autism project that we can build on? Would you be able to write something up or is it something we're not ready to do yet?

markasrobinson commented 5 years ago

I should be able to do something when we've finished the autism work - so hopefully in the next few weeks.

sarawilcox commented 5 years ago

Brill, thanks. I'll move it in the To Do list.

sarawilcox commented 5 years ago

Hi Mark, you might like to take a look at #70 too.

Tosin-Balogun commented 3 years ago

This was ranked 5th from the proposed group at the content backlog prioritisation workshop held on 24-Nov-2020

sarawilcox commented 3 years ago

Some content design recommendations from NHS Test and Trace cognitive diversity user research:

  • providing a range of information formats (text, video, audio, easy read etc.)
  • ensuring plain English is used
  • breaking text into small chunks and using clear headings
  • jargon is defined clearly if it must be used
  • accompanying text with images to help convey meaning
  • setting expectations of the full user journey and what is expected of participants when (picture guides/social stories, and videos) can be really helpful for this
  • avoiding vague or subjective language
  • as much as possible only showing information that is relevant to the user to reduce cognitive overload
sarawilcox commented 3 years ago

The DHSC team working on cognitive diversity user research said that their charity partners preferred the term "autistic people" to "people with autism".

Note, this is different from what we say generally in the style guide: "We use positive language and do not label people when talking about disabilities and conditions."

See, for example, the language on the National Autistic Society website.

NHS Digital's Ability Network says: "Some people prefer words like autistic, dyspraxic or dyslexic whereas some people prefer to put the person first. You should also avoid using person with or who has autism as this implies illness. Some people see it as part of their identity and not as an illness."

EllenDoyle commented 2 years ago

Is this the same or similar to #334

sarawilcox commented 2 years ago

Is this the same or similar to #334?

At one point, we were writing specifically about and for people with autism. Question is, are the needs of people with autism sufficiently different to those of people with other cognitive differences to warrant specific guidance on this?

If not, we could copy the details over from this issue to the broader "cognitive diversity" issue and close this one down.

@markasrobinson or @Jean-Elg, do you have a view? Would you have time to draft anything on this topic for Style Council to consider?

EllenDoyle commented 2 years ago

Merged into #334 and this ticket closed.

sarawilcox commented 2 years ago

Moved to the "Not doing" column now that it's covered in the cognitive differences issue.