Open Data 2.0 (Software/process demo): Sharing MRI data while protecting participants’ privacy: Two ways to get started

[jsheunis]

Sharing MRI data while protecting participants’ privacy: Two ways to get started

By Dorien Huijser, Developmental Neuroscience in Society, Erasmus School of Social and Behavioral Sciences, Erasmus University Rotterdam, the Netherlands

• Theme: Open Data 2.0
• Format: Software/process demo

Abstract

Sharing MRI data while protecting participants’ privacy: Two ways to get started

Dorien Huijser, Stephan Heunis, Peer Herholz, Cyril Pernet, Open Brain Consent working group

Sharing research data is becoming increasingly widespread and recognized by the scientific community, e.g., for reproducing results, combining samples or running new analyses. For brain MRI data, however, there are some hurdles that can make sharing them more complicated. Since brain MRI scans are of increasingly high resolution and often contain facial details, they are categorized as “personal data” and thus strictly protected by European law (the General Data Protection Regulation [GDPR]). For the past year or so, we have been working on several practical ways to facilitate sharing brain MRI data, while taking these privacy issues into account. One of these ways is a soon to be published decision tree for researchers in the Netherlands. This decision tree can be used by researchers to help them decide what part of their brain MRI data can be shared, when, and with whom. The second way is the Open Brain Consent initiative, a community effort which has developed templates for informed consent forms that take into account the correct GDPR workflow and wording, in that way facilitating the sharing of brain MRI data.

Useful Links

https://open-brain-consent.readthedocs.io/en/latest/gdpr/index.html# []()

Tagging @DorienHuijser

[DorienHuijser]

All good! @jsheunis feel free to add collaborators of the OBC that I may have forgotten.

[DorienHuijser]

For those interested, my slides are available here!