Open vhellon opened 2 years ago
Vision statement: Building a community between two organisations to share resources that will generate new insights in treatment heterogeneity to benefit both organisations and ultimately patients
Vision statement: Building a community between two organisations to share resources that will generate new insights in treatment heterogeneity to benefit both organisations and ultimately patients
Hello @vhellon , thanks for sharing your visioning statement! I am very interested to hear more about the project, I have to questions (perhaps our of ignorance). When you refer to treatment heterogeneity, what exactly do you mean? And are you focused on a specific disease area or is a broad concept?
Open Canvas: https://docs.google.com/presentation/d/1C-ApANb2VdPfPLsDTcNlz-kbur8HMJO8RrgV9kxCl0M/edit?usp=sharing
And I immediately got into your Open Canvas to learn more about the project. I think your proposal to bring two different organizations to share their expertise for the benefit of patients is great! I would perhaps on the resources section add something about the platforms for dissemination - which channels/platforms will you use to disseminate the findings of the community? Or is it going to be internal between both organisations? Then it will be more difficult to engage external researchers (from the User Profile)
Thanks so much for your comments @GemmaTuron! For the term Treatment Heterogeneity we're focusing on the broad concept rather than a specific disease area- so exploring all things related to why patients respond to treatments differently. So far we've been looking into missing data in healthcare datasets and how this can affect analyses. Other topics that we are likely to explore soon include predictive modelling and using multi-modal data- hope that gives you a flavour (and happy to chat further if not)!
And thanks for your input on the Open Canvas- a really good point. Have added a brief not about dissemination but definitely something I need to consider further!
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Vision statement: Building a community between two organisations to share resources that will generate new insights in treatment heterogeneity to benefit both organisations and ultimately patients
Hi, @vhellon: this sounds like a very worthwhile project and I like the aspect of connecting two organizations, I think it already gives it a great focus! I was wondering if you could specify a bit more which resources you are talking about?
Thanks @lwbwalma! Internally we'll be sharing resources such as databases and knowledge exchange but we hope to translate this into external sharing through community activities such as seminar series, workshops and outputs such as publications. (Slightly vague as we're still working it out!)
Thanks @vhellon ! Amazing that you will also be doing some external sharing, I especially like the idea of a seminar series, I can imagine that a recurring event like this can really help the community building :)!
Looks great, Vicky! Will be very interesting to see your project develop and what I could potentially learn from you in terms of your management of user channels :)
Personas and pathways doc: https://docs.google.com/document/d/1qFEOtZQDFeh2bC_aAaRiR-CpinriEDhThACxYw4wZmc/edit?usp=sharing
Project Lead: Vicky Hellon @vhellon
Mentor: @klauer2207
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