bennidi
commented
9 years ago Some very interesting articles show how patients like me has already helped:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2553248/ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2956230/ http://www.fiercebiotechit.com/story/patientslikeme-study-challenges-prior-als-claims/2011-04-25 http://healthaffairs.org/blog/2013/02/07/the-patient-engagement-pill-lessons-from-epilepsy/
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A platform that follows very similar ideas but with a focus on very severe conditions. They have cooperations with pharmaceutical companies and are a (not so much) for-profit organization. The UI is a bit old and not very user friendly but there is a rich set of functionality available.