opentrials / cochrane-schizophrenia-data

Cleaned data from the Cochrane schizophrenia database
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Cochrane missing: scientific title? #12

Closed roll closed 9 years ago

roll commented 9 years ago

Background I'm going to list some things I can't find in the Cochrane database as github issues. Sorry if I'm wrong, please let me know where it is) We have to move fast to make the #2 issue done so I suppose better is to ask than to waste more time on it - may be someone knows.

Topic Scientific title?

Model Trial entity:

"scientific_title" text,
pwalsh commented 9 years ago

I wold not expect this to be here. it is something that we are likely to come across as we start to acquire data from various registries like clinicaltrials.gov.

For now, I would just copy the "normal" title as the value of the "scientific" title.

roll commented 9 years ago

Am I correct that something like Arvanitis 1994 is a normal title? It's a ShortName field in the dirty database. It looks like there is no other title. @danfowler, what would you say?

pwalsh commented 9 years ago

@roll I am not sure. This is something for you and @danfowler to confirm :).

roll commented 9 years ago

I'm not sure too) so @danfowler , please take an another look)

danfowler commented 9 years ago

@roll @pwalsh I think the ShortName field is as good as any for the normal and scientific title in the database. As @pwalsh said, other sources have proper scientific titles (e.g. "Safety, Tolerability, and Immunogenicity of the Ebola Chimpanzee Adenovirus Vector Vaccine (cAd3-EBO), VRC-EBOADC069-00-VP, in Healthy Adults" in https://clinicaltrials.gov/show/NCT02231866).

Some guidance on this topic from Ben Goldacre's book: "I haven't given the full names of most clinical trials, because they are conventionally known by their acronyms, and most medical textbooks wouldn't bother either: the 'ISIS trial', the 'CAST trial', in the minds of most doctors and academics, are the real names."