"Two options" choice page

[jywarren]

"Contribute to the study" - help the WWB research team prepare a study about long-term health effects of indoor air quality in manufactured housing by contributing your own health data. Then participate in the forum!

• agree to share your complete raw data with the research team
• they will get your email
• when will they contact you? "We promise not to contact you except for A, B, C"
• how can they use your data
• who can see it?
• how will it be kept?
• when and how will it be published?
• get access to forums once you've completed that topic's questionnaire
• can research team see your forum posts?
• link to "more detail" page with a longer pitch, more detailed info

"Go straight to the forum" - share stories and resources, advocate and provide mutual support with others affected by indoor air quality issues in manufactured housing

• your data will not be visible to the research team
• only visible to others using the site
• you will be able to see the data being compiled for the study, but only in anonymous, aggregate graphs
• read stories by others and respond or discuss
• add your own story and get feedback and input from others who live in ...
• you won't be able to go back and take part in the study once you've read others' stories (and why?)
• link to more detail page

Weigh pros/cons of:

• an option to keep forum posts private from research team or not
• an option to be contacted by research team for reasons X, Y, Z (needing help?)
• check box for interest in being a facilitator

not too many extra options. Very important to keep this form as simple and legible as possible.

[shapironick]

How much data do you think we will generate from the surveys?

Nicole has access to 50GB of free HIPAA-compliant secure cloud data storage via UofM. Will that be enough? I'm writing about our data security for the two options page and I'm just wondering how protected health information (PHI) will get from our server to the secure cloud. Will she be manually downloading it to there?

[shapironick]

I've drafted this text. its on the wiki and in a google doc with full formatting. http://publiclab.org/wiki/wherewebreathe Some formatting didn't make it in there so i've also put it in a google doc https://docs.google.com/document/d/1FFYqxCAAe3LXVZxoUh-wa7knyARTOPFc7p1Sa0eb2w4/edit

I think we should have the privacy page on the forums with the different privacy/sharing options to choose from on a separate page (as i've done on the draft above) so that those who go straight to the forum and those who arrive at the forum via the study can both end up on the same page to set their settings.

I went little totalitarian on the straight to the forum people :) but we can loosen that up.

I still need to do the forum page but will wait to here y'all's thoughts before diggin in.

I leave for North Carolina tomorrow to workshop all our goodies! Can't wait to see y'all in the bayou soon. N

[jywarren]

That's plenty of space. Not sure if we'll need it per se, but would love to know more about Nicole's available space so we can plan around it. I'm aware this is waiting for input and review from me, thanks!

[shapironick]

here is more info on Nicole's space: https://www.umhsheadlines.org/2014/08/mbox-may-now-be-used-for-storing-phi/

On Fri, Feb 6, 2015 at 9:08 PM, Jeffrey Warren notifications@github.com wrote:

That's plenty of space. Not sure if we'll need it per se, but would love to know more about Nicole's available space so we can plan around it. I'm aware this is waiting for input and review from me, thanks!

— Reply to this email directly or view it on GitHub https://github.com/publiclab/wherewebreathe/issues/84#issuecomment-73344913 .

[shapironick]

This is all ready. it just needs details on server security from @jywarren or the new sys admin