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Add a new organization to ROR: Netherlands Haemophilia Society #419

Closed mariagould closed 2 years ago

mariagould commented 2 years ago

Summary of request: Add a new organization to ROR

Name of organization: Netherlands Haemophilia Society Website: http://www.nvhp.nl Link to publications: 10.1111/hae.14475, 10.1159/000215786, 10.1111/j.1365-2516.1995.tb00061.x, 10.1111/hae.14396, 10.1182/bloodadvances.2020002740 Organization type: Nonprofit (A non-profit and non-governmental organization involved in conducting or funding research) Wikipedia page: Wikidata ID: ISNI ID: GRID ID: Crossref Funder ID: Other names for the organization: Nederlandse Vereniging van Hemofilie-Patiënten Acronym/abbreviation: NVHP Aliases: Dutch Haemophilia Society Labels: Nederlandse Vereniging van Hemofilie-Patiënten*Dutch Related organizations: City: Nijkerk Country: The Netherlands Geonames ID: 2750065 Year established: 1971 How will a ROR ID for this organization be used? To identify affiliations for research publications, To identify affiliations for datasets, To be integrated in a scholarly publishing system Other information about this request:

adambuttrick commented 2 years ago

Publication/researcher affiliations are solid and list Netherlands Haemophilia Society exclusively. Public Benefit Organization entry for the org includes, "to promote scientific research with respect to hemophilia and related hereditary coagulation factor deficiencies and hereditary platelet disorders, and with respect to all that is related thereto."

https://www.nvhp.nl/over-de-nvhp.html

ORCID affiliation usage: https://orcid.org/0000-0003-4118-4670

Similar records in ROR: https://ror.org/013h8cr97

arthurpsmith commented 2 years ago

Hmm, I get the impression this is a very small organization (the website claims only 2 employees who don't appear to be engaged in research) so I'm not sure how the cited affiliations apply. However, it does appear to be a funder of research, and somehow at least two different researchers are claiming it as an affiliation in publications (note the ORCID relationship is as a "member" of the organization, which seems different from a research affiliation). So while it's not in the Crossref funders database I think this still should be listed in ROR. Moving to "ready".

adambuttrick commented 2 years ago

Assigned ROR ID https://ror.org/00wk22n41 in release v1.0.