sensein / covid19

A survey protocol for covid19
https://sensein.github.io/covid19/
Apache License 2.0
0 stars 7 forks source link

Amendment March #61

Open danielmlow opened 3 years ago

danielmlow commented 3 years ago

@Satra, so we'll add this. Please approve.

1) "Speech disorder" since we included only "Voice disorder"

2) Race and ethnicity:

I reached out to an anthropologist I know at University of British Columbia.

A thought is using the question without using terms race or ethnicity: https://www.pewresearch.org/fact-tank/2015/06/18/census-considers-new-approach-to-asking-about-race-by-not-using-the-term-at-all/

Option A) Very US centric: Which categories describe you? White Black Asian Indigenous Middle Eastern or North African Hispanic, Latino/a/x, Spanish Origin None Other race, ethnicity, or origin

Option B) More international (at least Ireland, Argentina, and US): If we care about being more inclusive, especially with regards to access to healthcare, adding more geographical but also economic areas: https://datahelpdesk.worldbank.org/knowledgebase/articles/906519

So something like this:

Which categories describe you?

Black African American (in Spanish add Afrodescendiente) Middle Eastern or North African Sub-Saharan African East Asian Southeast Asian South Asian Central Asian Pacific Islander Indigenous, First Nation (in Spanish add Pueblo Originario) Hispanic or Latino/a/x Latin American Brown Caribbean White Western European Eastern European Romani None Other race, ethnicity, or origin

3) Another option is asking about Quality of Life questions and/or Socioeconomic status to tease apart access to healthcare.

satra commented 3 years ago

let's ask what the ohbm special interest group did - they had to cover the planet.

danielmlow commented 3 years ago

Will you reach out?