A social network for rare diseases.
Josh Cancio, Manas Nair, Jessica Nguyen, Hammad Usmani
This repository for version control hosts code for the app associated with Friends of ADCY5.
Screenshots are also available in the /docs
folder.
This project aims to address the critical challenges faced by individuals dealing with rare diseases, particularly focusing on ADCY5-related Dyskinesia, an ultra-rare condition with fewer than 500 known cases worldwide. The lack of resources for finding specialized doctors and connecting with others facing the same rare conditions underscores the need for a dedicated platform to bridge these gaps.
By leveraging data analysis, geocoding, and web development technologies, we are building a solution that not only facilitates the discovery of healthcare professionals with expertise in rare diseases but also fosters connections among patients. Our goal is to cultivate an empathetic medical community that prioritizes trust, thereby encouraging research and funding towards finding treatments or cures.
GetResults.py
, JsonToCsv.py
, ParseJson.py
, etc.) for processing and analyzing data related to ADCY5-related Dyskinesia, including research publications, patient reports, and doctor profiles.To contribute to this project or set it up locally, please follow the instructions in the respective directories:
Single Webpage/react-website-v1-master
for setup instructions.We welcome contributions from researchers, developers, healthcare professionals, and anyone interested in making a difference in the lives of those dealing with rare diseases. Please read our contributing guidelines for more information on how to get involved.
This project is licensed under the MIT License.
For more information, support, or to contribute to the project, please contact one of the authors.
Let's work together to make a difference in the rare disease community, starting with ADCY5-related Dyskinesia.